Outside Of The Box Family

The date has been set to change Enzo's life forever!  And for the better!  No more vomiting!   Save the date, Wednesday, 3rd of January.  I think Enzo is ready to get his life going again and will be happy to leave when he recovers. Check out this x-ray of Enzo's stomach.  The picture on the left was taken 12/15 and the right 12/22.  As you can see Enzo's stomach is full and not draining due to all the inflammation in his GI.  Hence the vomiting.  The stomach needs to empty either down or up. With a little help from the surgeon, Enzo's GI will be rerouted to allow proper drainage and function, while providing some more rest for the pancreas and duodenum.  It's a lot more complicated that this, but you get the gist, right? It's major surgery but for the surgeon it's simple and the next step since all other options have been ruled out throughout Enzo's stay here since the beginning of December.  If you're curious what Christmas was like, it's a dre

Enzo's positive disposition continues to baffle the doctors!  Since our last post, Enzo has gone through quite a bit, to include an endoscopic biopsy.  Yet look at this cutie!  How happy does he look?  Enzo's beaming smile could fool anyone, you'd never suspect that his insides are severly inflamed. The results of the biopsies basically confirm that Enzo still has severe inflammation and blockage, but also confirms that he doesn't have other medical stuff they were looking into.  So unless you want the play-by-play of each biopsy, that's pretty much the gist of it all.  It's a lot and the medical jargon is extensive in my non-medical profession world.   In the end, the doc was shocked to see such inflammation on a kiddo with such a happy disposition!  He is one strong kiddo with an extremely high tolerance for pain.  One of the doctors confirmed she has seen other kiddos with Trisomy 21 (Down syndrome) handle difficulties with uncommon ease! The beautiful soul w

Through the generosity of hidden angels everywhere, we are now residing at the Ronald McDonald House next to Wolfson's Children's Hospital.  This place is a life saver!   Aside from the spacious guest room we currently call home, we are provided with a meal every night.  The coolest part is that you can watch the volunteers cook your meals in their industrial size kitchen.  Eli's favorite was pizza night.  My favorite was CSX workers.  They know how to make a yummy holiday meal!  Beef Tenderloin, green beans, broccoli casserole, mash potatoes, salad and homemade cookies!  YUM! Tonight we had spaghetti, salad and bun (and chicken tenders for picky eaters like Eli).  While here there are certain activities like Bingo.  Thursday nights are Bingo nights.  All the kids win a prize.  There are so many toys donated from so many people and the kids love picking the prize they want.  Prizes range from stuffed animals to board games to make-up kits. After all the kids win their prize